|Participant short organization name||Participant organization name||Country|
|Research in Advanced Medical Information and Telematics vzw||BE|
|HL7 International Foundation||BE/EU|
|3||NEN (Representing CENTC/251)||Stichting Nederlands Normalisatie – Instituut||NL/EU|
|4||IHE-EUR||Integrating the Healthcare Enterprise-Europe aisbl||BE/EU|
|5||EuroRec||European Institute for Health Records||FR/EU|
|9||NICTIZ||Stichting Nationaal Ict Instituut In De Zorg||NL|
|10||HOPE||European Hospital and Healthcare Federation||BE/EU|
|11||COCIR||European Coordination Committee of the Radiological, Electromedical and Healthcare IT Industry||BE/EU|
|12||SPMS||Serviços Partilhados do Ministério da Saúde, E.P.E.||PT|
RAMIT vzw is a non-profit association established with the support of the State University of Ghent. The membership of RAMIT is restricted.Founder is Prof Dr Georges J.E. De Moor and current president is Geert Thienpont. Directors are, amongst others, the Rector of the Gent University and the Dean of the Faculty of Medicine (both qualitate qua). The working?team in RAMIT is multidisciplinary: medical doctors, engineers, informaticians, statisticians and secretarial staff. Recent activities include successful national, European and International projects dealing with e.g. electronic medical record systems, health statistics, bioinformatics association studies, decision support systems, electronic health data interchange, eHealth standardization and interoperability, security, natural language processing and computer assisted instruction in medicine.
RAMIT has participated successfully in more than 90 National and International R&D projects (often in a co?ordinating capacity) in both the framework of EU?Research Programmes (since the second EC Framework Programme) and of national RD Programmes. RAMIT’s R&D activities resulted in the creation of five spin-offs.
Being an experienced coordinator of (many) EU funded projects, it has implemented a set of online tools to support the Online Collaborating Spaces.
Founded in 1987, Health Level Seven International (HL7) is a not-for-profit standards developing organization (SDO) and a founding member of the JIC for Global Health Informatics Standardization. HL7 International is dedicated to providing a comprehensive framework and related standards for the exchange, integration, sharing, and retrieval of electronic health information that supports clinical practice and the management, delivery and evaluation of health services. HL7 International and its more than 35 national or regional affiliates number 4,000+ members from 55 countries, including approximately 1000 corporate members who represent more than 90% of the information systems vendors serving healthcare. HL7 International provides standards for interoperability that improve care delivery, optimize workflow, reduce ambiguity, and enhance knowledge transfer among stakeholders, including healthcare providers, government agencies, the vendor community, fellow SDOs, and patients.
The HL7 International private foundation is non-profit organization established in Brussels in June 2010 to support the creation of health information technology standards that are widely and easily used enabling interoperability in healthcare. Specifically, the objectives of HL7 International in collaboration with the Affiliates currently established in 18 European Countries are: (a) to promote and encourage the use of HL7 frameworks and protocol specifications that serve the needs of the European community by health systems and service providers; (b) to seek formal accreditation for these HL7 protocol specifications where necessary; and (c) to enable high quality, cost-effective use of information systems in the widest variety of health and healthcare related environments. In this spirit, HL7 participates in the eHealth governance initiative, Semantic HealthNet, ANTILOPE, and EXPAND projects, while it coordinates Trillium Bridge a project supporting the implementation the EU/US MoU and Roadmap.
NEN, the Netherlands Standardization Institute, is a not for profit organization (approx. 260 employees) that stimulates and supports the development of standards. Standards are agreements that stakeholders make together regarding the quality and safety of their products, processes or services. As an independent and neutral organization, NEN plays an active role in identifying standardization needs and bringing together all parties concerned in order to develop and finance those standards. NEN is the Dutch national member body of CEN and ISO, respectively the European Committee for Standardization and the International Standardization Organization. NEN is co-leader for WP3 and will also contribute to the dissemination and align the project’s efforts with its core business related to the standardization activities where it acts on the behalf of CEN/TC 251 and through its partnership in the Joint Initiative Council (JIC) in which the SDO's ISO/TC 215, CEN/TC 251, HL7, IHTSDO, GS1, CDISC, IHE and IEEE cooperate to enable common, timely health informatics standards by addressing and resolving issues of gaps, overlaps, and counterproductive standardization efforts.
NEN is well experienced in managing European, international and national projects; NEN was responsible for the standardization projects, facilitated by the European Commission, for the eHealth Mandate 403 Phase 1 and the development of 5 European and international standards in the domain of ‘Identification of Medicinal products’ (EN ISO 11238, EN ISO 11239, EN ISO 11240, EN ISO 11615 and EN ISO 11616) and ‘Pharmacovigilance’ (EN ISO 27953-1 and -2).
IHE-Europe is a nonprofit association dedicated to interoperability in Health IT, IHE-Europe gathers a broad range of stakeholders to advance the shared exchange of patient information. It begins with an open process of developing integration profiles to assure IT systems can talk to each other. Then it requires testing these systems to verify that complex system delivers the data. Finally, IHE-Europe actively promotes wider awareness and use of these methods for assuring continued conformance and compatibility. As the mission of IHE is to improve interoperability (1) IHE develops Technical Framework Documents for IHE Integration Profiles, (2) organizes the IHE Connect-a-thon to provide a possibility to test interoperability, (3) organizes IHE demonstrations in order to promote the use of interoperable products, (4) and ensures the credibility of interoperability claims by individual vendors. IHE-Europe has two operational committees: IHE-Services offers services of testing developed by IHE testing hosted in Kereval which is ISO 17025 accredited company dedicated to IHE profiles assessment scheme and IHE EU Affairs which was the technical coordinator of Antilope project.
IHE-Europe develops the Gazelle Management tools that were used for epSOS projectathon and any other epSOS tests, including the tests of the Patient Summary, ePrescription, and eDIspensation. IHE-Europe is developing a high level of quality on testing methodology.
The European Institute for Health Records is an independent European not for profit organisation founded in 2003, federating national ProRec centres and/or accredited partnering organisations and promoting development and use of high quality EHR systems. EuroRec has participated in or co-ordinated almost 80 European projects, including many relating to the interoperability of electronic health records. In particular EuroRec is the scientific lead for the Network of Excellence on semantic interoperability, as well as a partner in projects dealing with interoperability for patient summaries, EHRs, pharmacovigilance and clinical research. EuroRec staff plays world leading roles in the development of EHR interoperability standards through CEN and ISO.
EuroRec is organised as a permanent network of National ProRec centres and provides services to industry (developers and vendors), healthcare providers (buyers), policy makers and patients. One of its main missions is to support the development of EHR systems quality labelling and certification. EuroRec has developed a repository of +1700 validated functional quality criteria for EHR systems, categorised, indexed and translated in 19 European languages as well as a series of tools for using these criteria in the context of quality labelling/certification, procurement and product documentation. EuroRec has published seals to initiate the harmonisation of EHR-systems, supporting the cross-border interoperability of those systems within Europe.
MEDIQ is an independent company with the mission to deliver consultancy of high scientific quality within health informatics. MEDIQ is responsible for running the activities of ProRec DK. MEDIQ has the clinical issues, patient issues and health management issues at its basis. MEDIQ have expertise and experience within interoperability testing, information systems requirements, deployment and assessment, IT strategy development, communication and integration analyses, electronic health records, quality management, evaluation and project management. Main customers are central and regional health authorities in Denmark and in Europe. Regional IT departments, hospitals, and Health IT industry. The core team in MEDIQ is consultants with a medical background and additional informatics and organizational education. The core team consists of engineers covering technology aspects and the staffs consist of senior consultants with 20 years’ experience as health IT-consultants.
The OFFIS Institute for Information Technology (http://www.offis.de), founded in 1991, is an application-oriented non-profit research and development institute related to the Computer Science department of the University of Oldenburg in Lower Saxony, north-western Germany. Its primary mission is to adopt the findings from university basic research in computer science and other relevant disciplines, to stay in touch with new market demands through its many years of experience in co-operation projects with the industry, and to bridge the gap between “basic research” and “application demands” through application-oriented research. By 2013, third party funding ratio reached the amount of 77% of the total yearly research budget of some 15 M€. With this ratio, OFFIS has a top ranking both among the other institutes in Lower Saxony as well as nation-wide. OFFIS staff currently counts 272 employees. More than 150 scientists (in their vast majority computer scientists, but also engineers, economists, physicists and from other disciplines as well) work in interdisciplinary teams. OFFIS focuses its R&D activities in three challenging application areas: Health, Energy and Transportation. The OFFIS “Health” R&D division, which participates to the iSPECIFICON project, addresses a broad range of research topics related to the use of information technology related to health and healthcare, including medical device technologies, integration technology, data analysis technologies and human machine interfaces. In the field of integration technology, the focus is on the support and improvement of intra- and interdepartmental workflows in healthcare, a key topic for a future-proof health care system. It is of prime importance that the interoperability of medical information be warranted among all IT systems and actors involved in the chain of care. In order to enable such seamless exchange of information, OFFIS intensively studies and promotes relevant medical standards such as DICOM and HL7 and supports integration initiatives like IHE (Integrating the Healthcare Enterprise), where manufacturers, the scientific community and users work together on this subject.
Regione Lombardia General Directorate for Health is responsible for healthcare policy design, implementation and delivery to its 10 million citizens. The General Directorate for Health holds the regulatory and administrative competencies in the healthcare domain, including planning and supplying, quality monitoring and control, appropriateness and efficiency of services. As regional governing authority Lombardy plans its own programming and strategies in prevention area based on efficacy, effectiveness and sustainability criteria and multi-stakeholders approach.
Nictiz is the Dutch national competence center for eHealth, IT and innovation. It is an independent, not for profit, organization and has an intermediary position between healthcare, industry and government. In the past years Nictiz has managed the national EHR programs and supported the development of national interoperability standards and profiles. To this end Nictiz maintains close cooperation with the international Standardization Organizations: IHE, HL7, IHTSDO, Continua, ISO. Nictiz is the National Release Center for Snomed CT. Nictiz has designed and developed the National Infrastructure for health information exchange. This is complemented with a qualification process. Nictiz is an active beneficiary and participant in the epSOS 1 and 2 projects and Antilope. Nictiz is a member of EHTEL and participates in the network for European competence centers (EHTEL/ELO).
The European Hospital and Healthcare Federation (HOPE) is a European nonprofit association of Belgian status, created in 1966. HOPE includes national hospital associations or representatives from national hospital owners’ organisations of the 28 Member States of the European Union. HOPE members are covering almost 80% of hospital activity in the EU.
Two major activities have been set up in HOPE since its creation: to develop and maintain information; to advise members.
HOPE has then been and is still involved in numerous comparative, exchange and dissemination activities. In the field of human resources, HOPE is now involved in the Joint Action on health workforce planning and was involved in the European Workforce for Health as well as in various other fields such as Hospitals and Occupational Health, Hospital Pharmacists, Nursing, Social Dialogue
HOPE has a long experience in EU activities, in particular in EU co-financed projects in the public health, research and information system areas. In the latest HOPE is a partner in the eHealth joint action and thematic network, the EU stakeholder forum as well as partner in the thematic networks AgeingWell and MOMENTUM. HOPE is also part of the advisory boards in several other projects.
Founded as a non-profit trade association in 1959, COCIR represents the Radiological, Electromedical and Healthcare IT industry in Europe. As such, our members play a driving role in developing the future of healthcare both in Europe and worldwide. COCIR is committed to supporting its members and communicating with its partners in Europe and beyond on issues which affect the medical technology sector and the health of EU citizens. COCIR also works with various organisations promoting harmonised international standards and fair regulatory control that respects the quality and effectiveness of medical devices and healthcare IT systems without compromising the safety of patients and users. We encourage the use of advanced technology to support healthcare delivery worldwide. COCIR’s key objectives include promoting free worldwide trade of medical devices and maintaining the competitiveness of the European health sector.
SPMS is the Health Ministry Central Purchasing and IT authority. It is a public enterprise created in 2010 functioning under the guardianship of the Ministries of Health and Finance. Its aim is to provide shared services – in the areas of purchasing and logistics, financial services, human resources and ICT – to organizations operating specifically in the area of health, in order to “centralize, optimize and rationalize” the procurement of goods and services within the NHS.
SPMS has a dedicated budget to EU projects which has been using to ensure its participation, as well as allocated staff. It is been created a specific Department for international cooperation.