Published deliverables

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D3.1 The case for formal standardization in large-scale eHealth deployment

Summary of deliverable

The case for formal standardization to support large-scale deployment of eHealth is asserted in this paper from four distinct perspectives that entail a balance of roles with different interests, costs, and benefits. Each perspective reveals a compelling case for formal standardization that can be empowered by collaboration and coordination among standards development and profiling organizations and their constituencies at all levels. It is the resulting trusted dialogs that will lead to co-creation in interoperability and nurture large-scale eHealth deployment.

The four perspectives are:

  1. Citizens (as consumers of health services)
    • Navigating the health system (or systems) for prevention, care, and wellness
    • Seeking active involvement and engagement in health maintenance and decisions on their care
  2. Workforce (in the delivery and administration of health services)
    • Communication and coordination of care by sharing relevant and trust-ed information within and across health systems
    • Dissemination and availability of knowledge for better decisions at the point of care
    • Workforce training in making the most of new technologies
  3. eHealth Market (where eHealth solutions and services are traded)
    • Creation of markets for new health and IT services
    • Expanding the choices for providers and consumers in existing markets
  4. Health System (where care is delivered and cost, quality, and access deci-sions are made):
    • Evidence-based rules and guidance for sustaining and innovating the health system
    • Public health reporting, surveillance, and analysis
    • Communication and coordination across health systems
The report concludes with a number of implications at the policy level for both the direct users and stakeholders of standards, as well as the standards devel-opment and profiling organizations, highlighting the need for collaboration and coordination at all levels. Notably, it concludes that actions need to be taken to promote the development of standards sets and tools to support them throughout the standards life cycle for development, deployment, testing, certification, as well as monitoring adoption and eventual revision.

D3.3 Initial draft roadmap for essential Standards Development: Strategic Options and Policy Instruments

Summary of deliverable

The eStandards Roadmap, as envisioned for the final deliverable of the eStandards project, will describe the actions to be taken jointly by standards development and profiling organisations (SDOs), policymakers in eHealth, and national competence centres that acting together will warrant high availability and use of general and personal health information at the point of care, at the fingertips of the individual citizen, as well as for biomedical, clinical, public health, and health policy research. This innovative use of health information, in line with the European strategy on the data-driven economy, will be made possible through the safe and cost-effective large-scale deployment of eHealth solutions in Europe. The deployment of digital health is well aligned with the needs, expectations, and requirements of the four identified stakeholder groups: citizens, workforce, eHealth market and health systems. They are based on the effective development, deployment and maintenance of essential eHealth standards, profiles and tools. The eStandards Roadmap will address the conditions for large-scale deployment of innovative eHealth solutions as well as the essential eHealth standards to make that deployment possible in a safe and cost-effective way.

D4.1 Solutions for a Coexistence of eHealth

Summary of deliverable

One of the major challenges faced by large-scale eHealth deployment projects is to select the appropriate set of standards for achieving interoperability within the network, and with all legacy systems that need to be connected to the network. There is not a single standard that would cover all needs of a project, and there is a multitude of overlapping and, partly, competing standards that can be employed to define document formats, terminology, communication protocols, etc. Therefore, eHealth deployment projects need to tackle the important question how the coexistence between competing or overlapping standards and standard options can be achieved in practical terms that ensure sustainability. This document provides a collection of “case studies” documenting the concepts for managing the coexistence of competing or overlapping standards developed in the research domain on one hand and on the other hand within large-scale eHealth deployment projects. The case studies describe which standards were used concurrently, which concepts were devised for their concurrent use, and what were the successes, failures, and lessons learned from the individual projects.

 

Deliverable 4.2r1

Summary of deliverable

The convergence towards a fully harmonized set of eHealth interoperability stand-ards at international or European level is a long-term vision, but far from the reality today. Different approaches in terms of perspectives (business, information and technical), semantic and technical solutions, standards and profiles used, terminol-ogies adopted, etc., are the natural consequence of the many factors influencing architectural decisions in eHealth deployment, including culture, domain, country, implementation timeline and the interoperability layers addressed.

D5.1 First Activity Report relevant to Global Standards and the EU/US MoU

Summary of deliverable

Deliverable 5.1 is the first intermediate report of the activities accomplished for the global standards engagement and in the frame of the EU/US MoU on eHealth Cooperation. This report will include the baseline action plan. Any standard artefact produced within the scope of WP5 and the reports/results of the activities accomplished (including the support provided) will be here referenced. This report aims to serve as input to the MoU roadmap and the eStandards Roadmap (WP3).